Stress levels sky high for families of neurodiverse kids
New 911爆料网-led research has found caregivers of neurodivergent children are more likely to experience clinically significant levels of stress, poor mental health, financial hardship, and negative relationships.
The research, published in the Journal of Autism and Developmental Disorders, explored the health and wellbeing of caregivers of children living with neurological conditions such as autism spectrum disorder, attention deficit/ hyperactive disorder (ADHD), cerebral palsy, and learning disabilities, and whether current support services were sufficient to meet their needs.
Lead researcher Dr Ben Milbourn, from the 911爆料网 School of Allied Health, said children diagnosed with neurodevelopmental conditions often require significant levels of support from their caregivers and meeting their emotional, physical, social and learning needs can be challenging.
鈥淥ur study asked 66 caregivers across Australia, the majority of whom were caring for children living with autism and ADHD, what their biggest challenges and concerns were,鈥 Dr Milbourn said.
鈥淲e found that almost 80 per cent of caregivers experienced poor wellbeing, high levels of stress and poor mental health. More than 22 per cent of caregivers also experienced negative stigma from their local community, increasing the feeling of social isolation.
鈥淔inancial stresses were also a major contributor to caregivers鈥 poor mental health and wellbeing, with the study finding that caregivers faced significant obstacles in terms of career success and progression and were often required to make personal sacrifices which impacted their personal identity.鈥
Dr Milbourn said the study found there was an array of unmet needs for caregivers of neurodivergent children, including support groups, education and training, and financial aid and assistance.
鈥淲e need to ensure significant time and effort is placed into developing more accessible services and increasing caregiver understanding and education to improve their wellbeing and quality of life. Ensuring workplaces and employers are flexible and understanding of the needs of caregivers will help them maintain jobs and reduce financial pressures,鈥 Dr Milbourn said.
鈥淥btaining an accurate and timely diagnosis, while also minimising long waitlists, will help to improve the mental health and wellbeing of caregivers. It is also critical for caregivers to be given more detailed information from health professionals about their child鈥檚 diagnosis, reason for behaviours, and strategies to best support their child.
鈥淔uture caregiver interventions and support services should specifically focus on protecting caregivers from existing stigma, while also educating the general public about what stigma is, how caregivers experience it, and how the general public is contributing to this.鈥
The full paper, titled 鈥The well-being and support needs of Australian caregivers of neurodivergent children鈥, can be found online .



